9 more weeks and we will be ready to be born!
Two nights in a row of Kangaroo care. We swapped babies and I held Deacon and Tyler held Avi.
Avigail started back up on her feeds yesterday and becase her stomach is getting bigger again, they are not going to increase her amount. She is going to stay 1.8 ml/hour. She did get her CPAP pressure lowered to 6 today which will hopefully help alleviate air being puffed into her tummy. She started at a pressure of 8 a week ago so she's making progress. Once she gets down to 5 and has few to no desats, she will get off the CPAP and onto Vapotherm (high flow oxygen).
Avi also got to meet w/ the OTPT (occupational therapist physical therapist) yesterday. At this point, they are checking her reflexes and making sure both sides of the body are functioning at the same level. Babies of this gestation are usually not seen by an OTPT, but because they've been there for 6 weeks they felt it was time. For the most part, all seemed to be well. She was having a little trouble pulling her knees up to her chest, but the OTPT thought this might be due to the size of her large belly! She also has a long and narrow palate which could lead to some issues with nursing/bottle feeding. She will meet w/ the OTPT once a week until she is discharged. Depending on her needs when she goes home, will depend on how often she is seen after discharge.
Deacon will get to meet with the OTPT on Friday. He did have to have a blood transfusion last night as his hematocrit level was getting low. He looked better today and had his coloring back! He also got his pressure on his CPAP dropped from 8 to 7 today.
