Avigail had a pretty eventful day. She had a clog in her ventilator and was unable to get oxygen. The doctor immediately took her off the ventilator. Instead of reintubating her, they decided they would try her on the CPAP and see how she does. She had a little difficulty at first, but seemed somewhat comfortable when we left later this evening. They stopped her feedings for a few hours while she adjusted to the CPAP.
They were able to stop Deacon's parenteral nutrition today (mixture of nutrients - sugar, protein, vitamins, minerals and salts dissolved in water). Since both the lipids and parenteral nutrition were stopped, they pulled out his PICC line! At this point, all of his medications will be oral as he'll get his last IV line out tomorrow!
He's on 4.5 ml of milk an hour (will go up to 5.5 ml/hour tomorrow) and he seems to still be doing well. Since they stopped the lipids and parenteral nutrition, they are now mixing my milk with a protein powder.
Deacon was also extubated today and so far, he's doing well on the CPAP.
Monday night measurements:
Avigail - 2 lbs 7 oz and 14.4" long
Deacon - 2 lbs and 14.4" long
Once they weigh 2 lbs 12 oz they will go from 6 change times/day (every 4 hours) to 8 change times/day (every 3 hours) and they will get my milk "gavaged" during the first 15 minutes of each change time instead of steadily throughout the day.
